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    Albuterol (2-4 x)
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    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
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    zyrtec (1x)
    azithromyicin (M, W, F)

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2017 VIDEO Walk Details

Friends and Family,

Sounds like tomorrow, Saturday, is going to be a cold and crummy day.  This is so fitting of our walking with cystic fibrosis. Rachel NEVER gets a day off.  EVER!  Not when it rains, not when it’s hot, not even after she has endured surgery.  She has faced and combated CF every single day of her life.  In her nearly 12 years of life, she has fought and struggled to slow down the progression of this awful disease EVERY DAY!  So when I think of the rain, and cold of “walk day” I  embrace it as the easiest part of her CF journey.  Sure we would love it to be sunny and warm, but the reality is, cf is rarely sunny.  But, we also totally understand if the weather is too crummy for any of you!  WE will celebrate each person that chooses to embrace and share in our journey!

Note for those who are willing to forge the yucky weather with us:

We will meet at Aksarben at 9:30.  If it is rain there is a building that we will be able to register and wait in until the walk.  The walk will be shorter, but we will still walk!

***10:00 Am We would LOVE to get a picture of our team. (Since we are expecting rain we may meet across the street from the park by Godfrey’s Chiropractic to run out and snap a quick picture.)

Look for the blue shirts (I will have mine on over my sweatshirt).  Your presence is really one of the greatest blessings to our family to physically see beside us.  We know that others pray for us, and give toward finding a cure, but honestly “seeing you” is incredible!  Total grace extended if it just doesn’t work this year. =)

  1. If you still need your shirts, we will bring them there (if you could send a message so we don’t needlessly bring the extra shirts, I would appreciate that!).

It might be a rather short event as we will likely take pictures, walk at 10:30, and then eat a quick lunch inside that building before we are on way.  My phone number is 402-880-9518 if you want to reach us.   We are EXCITED for tomorrow.  Rachel is pretty bummed that it will be raining, but still thrilled to see each and every one of you that brave the cold and rain to support her in raising awareness and support of this cruel disease.  

THANK YOU From the bottom of our hearts!

Take a moment to watch our 2017 video.  Just started and finished it last night. =0 It was quick, but shows the fight and Light of my girl! Please share it with whomever you can think to share it with.

Again, thank you for your love and support!

Paul, Tiffany, and Rachel Leaders 

P.S. We still have a limited amount of shirts if you would still like to purchase one.  Also, here is our link, you may still donate on line at this link. http://fightcf.cff.org/goto/RachelsRaiseofHope

EVERY “RIPPLE” of kindness matters!  Thank you for being part of our Team of HOPE!! ❤

 

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