• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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So excited, and equally crazy busy trying to do all of the little things that it takes to make an event and more specifically a fundraiser work.  There are so many aspects, and arms to it that it is slightly overwhelming, but mostly pretty AWESOME!

As hard as it is to ask others to engage and enter into your world.  It is equally hard to walk the road daily with a difficult disease.   If I could keep a journal of all of the parts of the day that it affects, it would blow your mind.  From the moment we get up it affects our day.  It affects each and every one of our children in more ways than we could ever possibly know.  And, then there is just the fight it takes for Rachel to push through the hard…it is amazing.

SOOO the other side of the hard is HOPE!  Fundraisers bring that to the forefront!

Jennie, is bringing that hope to our doorstep this year!  It has been fun, it has been encouraging and it has amazing. I love seeing God work out the details!

Okay, on to the video that my youngest son, Rachel and I put together this week with help from Jennie!  Take a moment to watch and then please pray for us, for Jennie and for the entire event!  We know that God is in it.  We know that He is good.  So, we work diligently with what is before us and then pray for His blessing, guidance, and will to be accomplished in and through it all!


Jcleadsus has shared a video with you on YouTube
Jennie Finch for Cystic Fibrosis
JF for CF fundraiser for Cystic Fibrosis

Here is the google doc with more information.  LOOKING forward to a fun time!!  16 days and Counting!!








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