• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

  • Recent Posts

  • Monthly Archives

EXCITED!!! Jennie’s Finch is Coming To Omaha

Jennie is coming to
OMAHA!!!3841170_orig

Well we have been BUSY, BUSY, BUSY working, praying, working some more and asking everyone we see to pray about this upcoming fundraiser with Jennie Finch.  I LOVE how God works all things together for His good, and glory.

My sweet friend, Shana and her girls, have been working diligently helping make flyers, and manning the registration portions.  We giggle a bit thinking that we are two mama’s who are in full swing with our kiddos and all of their sports this summer not to mention preparing for home educating in the fall, and yet, God has been faithful in lining up some amazing connections and bringing this all together.  There is no doubt that the Lord has been in this from the start.  It has been a lot of work, but definitely made easier knowing that we are not alone.  THANK YOU SHANA AND GIRLS!!!

img_2562

Here is a picture that I found of Rachel and Jennie from a few years back (it was honestly lost in the “cyber world” of pictures =( a reminder to be better at organizing memories.). Anyway, I am so glad that I found it. I have a more recent one…but, for now this one has surfaced. It is fun to see how my sweet girl has grown, matured and weathered the storms that come far too frequent with CF. When I think of Jennie I think of a warrior. It is kind of fun to see them together…FIERCE, SWEET WARRIORS!

Well, here are the details of the JF for CF event:

Screen Shot 2016-07-07 at 11.41.23 PM

http://rachelsraiseofhope.wix.com/jfforcf

 

Currently we are working on trying to find a couple more sponsor for the JF for CF t-shirts.  We are doing t-shirts for the clinic as well as some for purchase through the seminar portion.  My sweet friends, Sharp Stitches and Tommy Mac Printing have agreed to print our shirts (we will be collaborating with Jennie to come up with one that works well for this event).  Also, this week Play It Again Sports http://www.playitagainsportsomaha.com has agreed to be one of our top sponsor for this event.  We are thrilled and delighted to have their help in supporting and promoting our efforts.  If you have a chance, please thank them for their support and involvement.

Another exciting movement is that there is potential for the University of Nebraska Softball team  to come and support and help with our event.  That would be exciting to have such a wonderful, local program be able to help in our event.

We would love to find about 5-6 more sponsors.  If you know of anyone or any business that would be interested, please let us know. The sponsorships are 100% tax deductible through the Cystic Fibrosis Foundation.   That money goes directly towards research that will BUY a CURE for my RACHEL!!IMG_3182Screen Shot 2016-07-14 at 12.22.06 AM

We have had some AMAZING sponsors in the past and several of them are the same ones, however, having just finished doing our yearly t-shirt fundraiser it seems appropriate and necessary to reach out to a different group of people.  (Sports medicine clinics, insurance company’s, anyone that would like to get their name out as being a generous and helpful part of our community!)  If you can help facilitate this in this in any way, we would be extremely grateful!

 

We are also trying to find some fun give away’s as well as items for raffles.  Again, if you have any connections and or ideas, we would love to hear them.  Kids love to get fun items, and enter for raffles  Maybe a small sports related gift, something that a kid might enjoy, or perhaps a gift card to get a treat after practice.  Anything you could think of would be helpful.  I have forms ready to be sent and printed, or handed to you.  Honestly and thankfully, the “ask” has been fluid this year when people see the flyer with beautiful Jennie’s photo on it.  We only have about a month left, so any help others would be willing to provide, would be a blessing.Unknown-3images

One of the BIGGEST ways that you can help is to P-R-A-Y!!!  We know that there is power in prayers.  So we ask that you would pray for, and alongside us, with this event.  The event is in just over a month.  My heart starts racing a bit thinking about that…but then, I kinda smile and remember that God has ALWAYS been faithful, I have no reason to believe that He will be anything less now.  He is a good God.  We ask for your prayers and encouragement to see and know this truth in action.Unknown-4

Another way that you can help is by spreading the word.  We need to point people at our website, and get them signed up!  The traffic on the website is starting to really pick up and we are thankful for that.  However, with a little more than a month left, we would love to see TONS of people registered and ready for the camp and seminar!  Jennie, in her incredible humbleness, was not sure we could fill a camp.  I AM, however, pretty confident that we can.  (Today my son and nephew ran some errands with me and we decided to pop in a couple of places to ask for donation.  Of the four places we went, three of them knew who she was and were excited but also shared sweet donations for our event!) It is just a matter of getting the word out.

Unknown-5

Jennie, you are a beautiful child of God. A loving wife, an active, caring mama and a precious soul that cares deeply for those around you. ~LOVE ABOUNDS!  My heart is full because of your incredible kindness to our family, and especially, Rachel!

Every step of the way Jennie has blessed me more than I could imagine.  She is the REAL DEAL!  She has a heart of gold, and an encouraging spirit that radiates JESUS!  I am so very proud to call her my family and look forward to not only spending some time with her, but watching her bless others in the platform that God has given her.  I am truly in awe of God’s work in her life and heart!  Sometimes sports figures are put on a pedestal, but her pedestal is at the feet of Jesus and there is nothing more beautiful!  THANK YOU JENNIE for your example to others!

One other thing that should be noted.  This fundraiser is different than any we have done in the past in that we are aiming to not only raise money for the Cystic Fibrosis Foundation through sponsorships and donation, but we are also trying, for the first time, to build a medical fund for Rachel.  We pray that we do not need it for a long, long time, but we feel we must be wise and directly protect her medical/health andfuture.  It is very hard for us to do this, but we also feel like it is the responsible thing to do.  We are not completely sure what that will look like yet, but we are prayerfully confident that God will guide us clearly in the specifics13220710_10155503971866959_1904845412012712912_o copy

I just wanted to take a moment to record God’s faithfulness in yet another busy, beautiful season of our lives.  His love is overwhelming to my heart.  As much as CF is hard and that I wish like crazy, every day, that Rachel did not have to contend with this difficult disease and that it did not affect every.single.person in our family, I do KNOW without a shadow of a doubt that God is so very good and that He has purpose in the pain, and we are better for it.

Thank you for taking the time to read, pray and love on our family.  We are incredibly, and humbly blessed!

images-3

Advertisements

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: