• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
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    Periactin (2x)
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    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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2016 Rachel’s Raise of Hope SHIRTS!

 2 Samuel 10:12 Be strong, and let us fight bravely for our people and the cities of our God. The Lord will do what is good in his sight.

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This verse is so fitting of our our hope.  We are charged to be strong and fight bravely (not only Rachel fighting, but those around her fighting on her behalf) and why…because the Lord will do what is good in his sight.  His good is better than we could ever imagine!  Even in the pain, even in the struggle…His goodness is amazing!!  You all are a reminder of that truth.

 

We are asking for a suggested donation of $12 for each shirt.  (We will have a family discount of 5 or more shirts.  Message me for details at jcleadsus@msn.com.)

One of our favorite things about our shirts is seeing our friends and family spreading the awareness of our fight throughout the year.  Not only at the Great Strides walk, but all through the year.  We say it all of the time…

NO ONE FIGHTS FOR A DISEASE –
THAT THEY KNOW NOTHING ABOUT!

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                  SOME OF OUR WARRIORS

We are thankful for the group of WARRIORS that are ever fighting for Rachel’s…

HEALTH~
BREATH~
LIFE~
AND FUTURE!!!

Our friends and family being willing to not only buy a shirt, but wear it, and share a bit of our story of life with cf where they live is awesome.  AND…it WILL MAKE A DIFFERENCE!!  This one act, is a WARRIOR ACT!!

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WILL
FIND
A
CURE!

***Message me at jcleadsus@msn.com for more information.  Last year we were blessed to be able to  SHIP our Rachel’s Raise of Hope shirts to more than 30 states and 4 counties!!  HOW COOL is that??!!!

Thank you for being a blessing for our entire family!  But especially, for the HOPE it brings to my girl.  We believe she will reach the full potential that God intended for her beautiful life!

 

 

 

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