• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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Count Down to Walk #5 Days

Our walk is in 5 days!!  We are so excited.  Every day Rachel comments on how she can’t wait for Saturday.  It is cute.

Details of the walk:

Check-in: 9:30am
Team Picture: 10:00 (We cherish each one of the faces and families represented)
Walk: 
10:30am
Distance: 1.5 Miles
Chapter: Nebraska – Omaha
Event Location: Aksarben Village – Stinson Park,

There is a light breakfast before the walk, and a lunch after the walk.  It is a family fun event that raises money and awareness just by others joining us.

The walk is such a time of encouragement for our entire family.  It is something we treasure throughout the year.   I don’t know how to explain it, but it is something that lifts our spirit during some of the toughest times that CF throws at us.  It is such a reminder that we are not alone.  I know that it takes special effort to come out and walk with us…but truly it is a gift from the heart!  A gift that strengthens our hearts and fight to warrior on.

Thank you for your love and support!  We are blessed.

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Help us to have more special mommy/daughter moments

 

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We are a pretty fun team fighting for a cure!  This mama wants to see a beautiful future for her girl!leaders036 copy Thankful!!

Pictures taken by the lovely JSelanders!  Thank you for the great mama and daughter pictures!!

Amazingly, we are almost at our team goal for this year.   Each one of you that has contributed to our fund this year in Rachel’s name…know that WHEN we get the cure, that you will be able to rejoice in the victory and know that you have been part of the miracle of bringing a new medication to save our girls and give us more tomorrows with her!!!  We praise God for the love~Thank you! http://cffh.convio.net/site/TR/GreatStrides/GreatStrides?px=1360314&pg=personal&fr_id=3412

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