• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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Are We Close to a CURE?

Courage and fear belong together.  
Fear tells us that life is unpredictable,
anything can happen, courage replies quietly,
“Yet, but God is in control.”


IMG_7701I thought the quote above so accurately described our life as relates to the fear and the courage it takes to press on.  Especially in light of CF, but I praise God that He is in control!!

Please check out a sweet fellow warrior mama’s post that so specifically and wonderfully describes the current goals , aims and  progress present in the fight for a future with those with cf.  I am absoluetly encouraged and inspired after reading this (it’s a bit of science lingo to muddle through, but OH so good!)  We are getting close!!  Praise God.  I am overwhelmed with gratitude…it is because of YOU!  I say it often, EVERY DOLLAR, EVERY ENCOURAGING ACTION brings hope and courage to us to fight another day.   Thank you for giving for my child’s future and life!!




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