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Great Strides & Tshirt Orders

What gives me the most hope every day is God’s grace; knowing that his grace is going to give me the strength for whatever I face, knowing that nothing is a surprise to God.~Rick Warren


Last night I was at a homeschool meeting and the leaders gave me a chance to talk about the Great Strides walk.  I was caught slightly  off guard, and consequently fumbled a bit over my words in explaining just how impactful the CF Great Strides walk is, and what it truly means to our family.

It’s so difficult to express how this walk touches our family!  Knowing that people are willing to engage in our battle alongside us is something that reaches beyond any level that I could ever communicate (unless you have walked a similar road).  Another CF mama expressed it this way, “Having a child with cf is like watching your child drown in the middle of a lake and not begin able to do anything about it!” While that is certainly the sentiment we feel at times watching Rachel soldier through this devastating disease.  I would go one step farther with this analogy. Every time someone asks about Rachel, says that they are praying, gives of their resources, shares our story, buys a shirt, or takes time out of their busy schedules to walk alongside us…it reminds us that we are not alone!!!  These actions are like a life preserver sent to Rachel to hold on, and really our whole entire family!


Every single year we engage in raising awareness and money… it is hard!  I can think of a hundred other things that I would rather do than ask, beg and plead for others to come alongside and help us fight for Rachel’s life.  Honestly, every year we struggle with a fear that we are alone fighting for our girl.  We often times are the only ones that see the pain that cf causes her sweet body.  We are the ones that hold her when she cries from frustration or fear.  We are the ones that have hard conversions about death, pain and suffering.  We are the ones that try to point her to our Savior for the strength and purpose through the midst of the storms of cf.  BUT YOU… Well, you all encourage our hearts and remind us that we are NOT ALONE!!!   YOU ARE OUR BLESSING!!

Just some of the amazing people from around the country and world that were representing Team Rachel's Raise of Hope.  BLESSED!! =)

People ordering and representing shirts around the country…is amazing!  From high school, and college and people that we have only briefly me.  These are just some of the amazing people from around the country and world that have represented Team Rachel’s Raise of Hope in the past. We are so BLESSED!! =)

What I was not able to communicate at our meeting last night was that our walk is about HOPE!  Our team name, Rachel’s “Raise” of Hope says it all!

Raise Hope!
Raise Awareness!
Raise Faith that Jesus Cares!
Raise Money towards a cure!

So on to shirts!


TiffFront 2
$12 Each

Our t-shirt fundraiser has done well so far this year!  Again if you would like to purchase a shirt (all proceeds going towards researching a cure), please email me your sizes to jcleadsus@msn.com.  Or message me on Facebook.  This address is also how you can pay through our PayPal account. (Send money as friends and family to jcleadsus@msn.com.)  Or feel free to message me to send a check in the mail.  It would be fun to see another 50 shirts ordered this week!

 ****We will close orders at 9 am next Friday, April 17th.   (I will order a few extras of several sizes, but in order to guarantee the size you would like, order this week! =) )

Also, thank you for those who have signed up to come out and walk with us on MAY 16.

Registration is at 9:30
Walk Begins at 10:30.
Here is a link to sign up! http://fightcf.cff.org/site/TR/GreatStrides/84_Nebraska_Omaha?px=1360314&pg=personal&fr_id=3412

There is no medicine like hope, no incentive so great, and no tonic so powerful as expectation of something tomorrow. by Orison Marden

THANK YOU seems like two very little words…and yet, the heartfelt emotion behind them could move mountains!!  THANK YOU for the hope of a better LIFE tomorrow for my little girl!



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