• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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Celebrate Life

Celebrate!! Rachel turns 8 years old today!  Blessing and joy from the Lord to have this sweet child in our lives.  God is so very good.

8th birthday

8th birthday

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A couple of weeks before Rachel was due. (Little did we know just how much our lives were about to change with the addition of this miracle!)

Moments old one of the few tube-free pictures we have of her from the first month of life.

Moments old one of the few tube-free pictures we have of her from the first month of life.

 

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This picture was taken a couple of hours after giving birth. The picture still brings tears to my eyes as it was moments before they took Rachel off to surgery. Mama putting on a brave smile at the uncertainty of the what was to come.

Praise the Lord for the journey that He has given!

Hours after surgery. (One of the longest days of my life.) Oh, how far we have come~ Praise the Lord for the journey that He has given!

Love this girl more than words could ever express!!

Love this girl more than words could ever express!!

Feeling on top of the world!  A girl on a horse...equals joy.

Feeling on top of the world! A girl on a horse…equals joy.

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A great birthday gift. A horse ride in a pasture was one of the biggest treats ever!! Thanks JoDee for making my girl smile!

Blessed to get to watch Rachel grow and change.  May the Lord continue to guard and watch her, shape and mold her for His glory and His purpose!

Blessed to get to watch Rachel grow and change. May the Lord continue to guard and watch her, shape and mold her for His glory and His purpose!

God is GOOD!!  Happy Birthday, Darling.  Here is to another 70 birthdays!!

 

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6 Responses

  1. Happy Birthday Rachel! Beautiful baby, beautiful girl!

  2. What a special post and a special girl. Can’t imagine how exciting and fun this day is but also so meaningful because of all you have been through! Liz

  3. I have been reading through your blog and was noticing the meds your daughter takes daily. I am familiar with many of them as my daughter also takes them. But, you do have quite a few things listed that I have no knowledge of. I was wondering if you would mind sharing with me a little about the meds and your daughter’s experience using them– especially if you noticed any improvements in your daughter’s health. I didn’t see an email on your blog to contact you so decided to just write this under comments. I was especially interested in the Glutathione – inhaled and the glutathione and Ursodial. Any information you could give me would be greatly appreciated. I was thinking of asking Bethany’s CF doctor about them when she goes back in a couple of weeks. My email is — Manning115@verizon.net Thanks so much.

    • I did finally send you a message. Sorry that it took me so long to get back to you. Hope you and your family are doing well!!

      Blessings,
      Tiffany

  4. Hi I’m Heather! Please email me when you get a chance, I have a question about your blog! LifesABanquet1(at)gmail.com

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