• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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Great Strides Walk 2013

We had an amazing turnout this year especially considering the very cold and wet weather!  It was freezing (well pretty near freezing at 20 degrees windchill for MAY).  Praise the Lord for the blessing of friends and family!  Many of the people at the walk will never know the joy and encouragement their presence brings to our entire family.  It truly is priceless!

Amazing group of people that came out to brave the cold and rain.

Amazing group of people that came out to brave the cold and rain.

Also wanted to announce that:

Rachel’s Raise of Hope team raised over $6,000 this year through generous donations!

The Nebraska Foundation Raised: 363, 554 and counting 

Those dollars go directly to research.  Whether you were present at the walk, or in spirit…thank you for being part of Rachel’s team of people fighting for her future.  We know that we can not do any of this with out support, and yet it is extremely humbling to know that others truly care enough to make a difference. WE WILL FIND A CURE!!!  Thank you!

Please enjoy some of the pictures from the morning of the walk.  (My fingers were a bit cold, so I didn’t take my normal bunch of pictures.)

Sweet times with Dolly the horse.

Sweet times with Dolly the horse.

One of our favorite parts of the morning.  The mini horses that came to walk with our team.  BLESSING!!

One of our favorite parts of the morning. The mini horses that came to walk with our team. BLESSING!!

Chilly, but joyful.

Chilly, but joyful.

Bundled up, but blessed with friends who care!

Bundled up, but blessed with friends who care!

Inspired and encouraged by these sweet faces willing to help raise awareness in our fight!

Inspired and encouraged by these sweet faces willing to help raise awareness in our fight!

It was a quick walk, but our purpose was served...support from loved ones!

It was a quick walk, but our purpose was served…support from loved ones!

Family love!

Family love!

Cheerleaders from my sisters school.  So fun to see these girls, cheering for a CURE!

Cheerleaders from my sisters school. So fun to see these girls, cheering for a CURE!

Even had a dog sporting the Rachel's Raise of Hope shirt.  LOVED IT!

Even had a dog sporting the Rachel’s Raise of Hope shirt. LOVED IT!

There is no greater encouragement than seeing friends and family coming together to make a difference for your child's life.

There is no greater encouragement than seeing friends and family coming together to make a difference for your child’s life.

Family cheering on our girl's hope of a long, healthy future.

Family cheering on our girl’s hope of a long, healthy future.

Good day for a C.O.L.D walk.

Good day for a C.O.L.D walk.

Another attempt at getting a group picture.  It was hard, with the cold and rain.  We were so thrilled to see this turnout.  We truly felt the love on this morning.

Another attempt at getting a group picture. It was hard, with the cold and rain. We were so thrilled to see this turnout. We truly felt the love on this morning.

Blessed by the Lord for good friends and family to come alongside and strive for a life that is free from the worry of Cystic Fibrosis.  Soon, very soon we pray that life will be drastically different for our sweet little girl.  Soon we pray that she will be able to just be a little girl…with the hope of a bright future free to live without the constraints of this disease.

Jeremiah 29:11 For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.

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