• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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Great Strides 2013 Video

Please take a moment to watch our video.  Then consider making a donation.  No dollar amount is too small!!  Also, we would love to see you at the walk on Saturday, May 4th!

WHERE:   Aksarben Village- Stinson Park 76th & West Center
WHEN:  THIS SATURDAY, May 4th
TIME:  The walk starts at 10 am.  **We are taking a group photo at 9:30 ish.** Come early for donuts, bagels and coffee.
We will be wearing the red Rachel’s Raise of Hope shirts from last year.  If you do not have one, I still have a few available.  Or just come in a red shirt for the picture (on the outside of your winter coats =) if you must).
OTHER:  Lunch will be provided after the walk.
The weather may be crummy…but as you contemplate…remember that the walk is only one day.  CF is crummy 365 days a year!!!  Rachel never gets to take a day off.  She must walk this path before her, and it blesses her to know that others are willing to walk it with her!  Good or bad weather.  So please come!  If you have a chance to sign up great, if not, please STILL COME!!
Click here to donate/sign up to walk: http://www.cff.org/great_strides/PaulAndTiffanyLeaders
Thank you for making a difference in the life of my girl, and family!
With Heart Felt Gratitude and Thanks,
Paul, Tiffany and Rachel
Jcleadsus has shared a video with you on YouTube
2013 CF 1
©2013 YouTube, LLC 901 Cherry Ave, San Bruno, CA 94066
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