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Seeing God’s Heart! THANKFUL!

Sweet Rachel! Enjoying the night that was all about her HOPE AND DREAM FOR A CURE!

The beautiful soul that helped bring Rachel into this world (our midwife).

Psalm 103:3-4
Praise the LORD, O my soul, and forget not all his benefits- who forgives all your sins and heals all your diseases, who redeems your life from the pit and crowns you with love and compassion.

Alright, I was trying to wait until all of the money was in, and the extra items sold.  However, I have had so many people that were curious how much money we raised in our battle for a cure, that I can not hold back our excitement any longer!  (We still have a “mini-acution” and bake sale on Friday with the unsold items at hubby’s work.)

I feel like God blessed us in amazing ways again this year!  This week I have been able to pour over scripture a bit (more time available =) so you will need to bear with me a bit because my heart it overflowing with gratitude to my Lord and Savior for His goodness and care over us!  And I must shout it out!

Exodus 15:26
“If you diligently heed the voice of the Lord your God and do what is right in His sight, give ear to His commandments and keep all His statutes, I will put none of the diseases on you which I have brought on the Egyptians. For I am the Lord who heals you.”

We know that God can fully heal Cystic Fibrosis for our precious girl with out ANY HELP from us!!  However, we also know that He has a purpose for all that He allows.  Part of our responsibility is to give Him praise through all of life’s situations…the good, the easy, the hard and the painful.  Cystic Fibrosis gives us opportunities for all of the above.  So today…

 “Let them shout for joy and be glad…And let them say continually, “Let the LORD be magnified, Who has pleasure in the prosperity of His servant.” Ps. 35:27

OUR TEAM TOTAL raised so far is $17,333.08!!

(Can we reach $20,000?!!)

This total includes:
~$500 from an unexpected blessing of getting to sell pies!
~$820 from CAFCCF (Committee for the Advancement of Funds for the Cure of Cystic Fibrosis), some sweet home-school boys this fall who worked at garage sales, and odd jobs to raise that HUGE amount!
~Generous T Shirt Donors/sponsors
~ And online donations
~Total at the fundraiser was over $12,000 ($2,000 more than last year!!)

We are extremely humbled and full of incredible gratitude that so many have come alongside to help us fight for Rachel’s LIFE!  We are beyond thrilled at getting to see God’s heart  of compassion through so many amazing people coming out to our event and caring for our family!  We estimated that we had over 600 people come out in love and support of our HOPE for a cure!  THANK YOU!   Our family clearly saw the love of the Lord through each item purchased and every soul that took the time to come and walk through the door last Friday night!  AMAZING!!

Through Rachel’s Raise of Hope efforts our hearts have been lifted!!  Our burdens seem a bit lighter…if only for a little while!  We have a renewed HOPE that Rachel will have a long bright future!  Hope that CF will NO LONGER be feared!  Hope that Rachel will be free of hours of treatments and hundreds of medications weekly!  Hope that someday Rachel will be completely free of the enormous burden of CF!  Thank you for being part of Rachel’s “Dream Team” of people fighting for her LIFE AND BREATH!!

Please enjoy a few more pictures from the night!

Live auction was a fun addition to our night!

Kids auction was so much fun! Mother-in-law delightfully helping.

Blessed by people sharing God's love!

One of my favorite pictures! Rachel and Great Grandma Bryan. May Rachel have the hope of growing gracefully old and beautiful like her Great Grandmother!

Adorable cousins sharing the love!

My amazing roommate from college, Nicole, that drove 10 HOURS!! All to "HOPE FOR A CURE" with us!!! THANK YOU!!

Encouraging sister and nephew! Thank you for all of your help and love!

Helpful friends that worked so hard!

A precious friend! Sharon, you are an amazing blessing from the Lord, thank you for loving our family!

Love this picture too!

Blessed by this sweet family that came alongside to help again this year in doing the bake sale! It was amazing!

The awesome COOK! He and his mother worked for HOURS making delicious spaghetti and meatballs! THANK YOU!!! THANK YOU!!

Another amazing friend who helped in so, so many ways!! THANK YOU!! Thank you for loving on my girl that night too! She was beyond tired. You are a blessing!

Delicious cake with a message of hope and life! Thank you, Corie!

Yummy cake! Made special for Rachel, thank you, Judy, for your love and care!

Brother, Nathan and friend enjoying getting to help and serve!

Blessed greatly by these sweet friends! They were encouraging, prayerful, an extremely helpful with the check in and check out process! God is good!

Part of Rachel's team of friends fighting for her future!! Thank you boys!

My dear friend who took many of the pictures! Thank you http://www.tracywoodphotography.com!!! An amazing blessing to see the night through your eyes and lens!

Another sweet friend who took pictures! Thank you!

Many kids enjoyed a little bit of football and time playing outside!

Thank you Mark for your help in making the night a success! One of our Emcee's!

Thank you Nicole! Our other Emcee. Here she is talking about our hope and dreams of a long, long life for Rachel. The dream of seeing Rachel's children, and her growing to be a very old woman! Thank you Nicole for your love and support!

Beautiful friend serving our "bikers" that came out to support our HOPE! There were about a dozen bikers from our community who came out! Wish I could have gotten a picture of them with Rachel! Pretty cool!

Loving sisters! So thankful for both of these precious girls!

A moment with some dear friends!

Smooth check in process. (In the very background, Mary Anne, who helped with the volunteers.) Thank you all!

Delighted to see all of these friends!


Precious girl! Ready to WIN AGAINST CF!!

Philippians 2:13 “For it is God who works in you both to will and to do for his good pleasure.”

THANK YOU FOR FIGHTING FOR MY DAUGHTER'S LIFE! (Thank you http://www.jselanderphotography.com for these awesome pictures!)

Full of smiles knowing there is a team of people ready to battle against CF with her!!

CF CAN BE BEAT thanks to your help!

Words can not express our gratitude for joining in our FIGHT!! THANK YOU!!!


Isaiah 40:31 “But they that wait upon the Lord shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary, and they shall walk and not faint.”
This verse contains hope!  Our greatest desire is that all people come to a knowledge of the Lord’s saving grace!  We also pray that people with CF will one day be able to run and not be weary and walk and not faint!   We pray for a cure!
Through all of this success, I must share a bit of my heart and the reality of what we face.  Before our event Friday night my dear husband requested to gather the volunteers for a quick prayer before the evening.  During his prayer he prayed for safety and God’s will.  But then he specially prayed for a cure for Rachel.  This is something that we pray for daily, but somehow the magnitude of the request being brought before the Lord with a group of our sweet friends was truly impactful to my heart!  It brought me to tears.  The many hours of calls, emails, the begging and pleading everyone that I know to come help fight for my child was overwhelming!  We did all of this because her life is precious; because we want her to live!  Not a hard, painful, weary and shortened life, but rather one that is long and full of hope, and health!   When I truly stop to think about the difficulties of her current life and what she has before her it breaks my heart!  She is tough. She is brave. But this is a fight that requires everything that she has to give!  When she is tired, weak and worn, we, as friends and loved ones, must urge her on!  CF is too heavy of a burden to carry alone!  When I think of all that came alongside on this journey, by heart is overwhelmed with joy and gratitude!  I praise the Lord for each and every person!
On the cusp of our amazing night we were greatly reminded of the challenges ahead.  The night of our event, we learned that a dear sweet friend was taking their newborn and 4 year old CF kiddos to the ER because of frightening breathing complications.  Also, the morning after our event we (hubby and I) went to a CF Family Day at the hospital and were surrounded by a group of CF people that were not doing as well as Rachel is currently.  The room was full of the harsh reality of CF!  There were many parents there, but there were also many with CF in the room.  The junky coughing, the difficulty breathing, the i.v. poles, the masks, gloves, and disinfecting gowns were all reminders of the fight ahead!  And as a mother it was tough, the tears flowed knowing that if things don’t change…this is Rachel’s future!   The tough reality is hard to fathom…I CAN NOT!   I WILL NOT!  THIS DISEASE MUST BE STOPPED!
In light of all that helped, please continue.  Please share our story, share our success, but please keep fighting!  Knowing of others in our CF community that are literally fighting for their life…it is a reminder that Rachel’s life depends on our continued fight for change!  So while we will bask in the glow and joy of friends and family raising over $17,000 to cure CF…we can not, we must not stop until we reach that goal of a cure!  Please help us find it!
“But blessed is the man who trusts in the LORD, whose confidence is in him.” Jeremiah 17:7
God has amazing plans ahead for Rachel. I am confident of that!  Rachel’s Raise of Hope 2012 was proof of God’s heart for her and our family!
I John 5:14-15 “Now this is the confidence that we have in Him, that if we ask anything according to His will, He hears us. And if we know that He hears us, whatever we ask, we know that we have the petitions that we have asked of Him.
***The Great Strides Walk is on May 12, 2012!   http://www.cff.org/Great_Strides/PaulAndTiffanyLeaders   It is a great family event!  Please plan to join us!  If you can not, you can still donate online!  Also, we still have shirts available for purchase, they are $8 each.  (If you live out of town, email me at jcleadsus@msn.com and I would be happy to ship them to you,  but please consider a little extra for shipping.)
Humbled by His grace and love shown through your hands and lives~

                 Thank you from the deepest part of our hearts and soul’s! 


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