• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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  • Monthly Archives

Tomorrow the Big Day

Yeah the day is finally (almost) here.  Months of work, hours of prayer, tons of people helping.  I am a bit overwhelmed right now.  We just left the hall and it is full.  Praise the Lord for His greatness!  Knowing that others are willing to FIGHT for your child’s life is a feeling like no other!  CF is hard, even on its easiest of days.   But somehow that load is a little lighter with the knowledge that others are standing with you!  It is truly amazing!  Thank you from the deepest part of my heart!!

Now, one last reminder…please plan to come to Rachel’s Raise of Hope TOMORROW!!  The hall is nearly ready, now we need to have our wonderful friends and family come along side us to eat, shop, and have a great time battling Cystic Fibrosis with a lot of fun and joy!

Thank you so much for all that you have done already.  God is good and we are so very grateful for friends who love us and are willing to join in such an event and calling of our lives to work to save Rachel’s.
Blessings to you all~  See you tomorrow!!
If you have any questions, feel free to email me jcleadsus@msn.com
In God’s Mighty Hands~
Tiffany
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