• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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Will You Be on R-Team?!

Ready to take CF DOWN!!!!

R-Team, which we often call Rachel’s Raise of Hope around our house.  We like the sound of it for many reasons, and it is shorter to say =).  Either way, will you be part of it?

Life has been very good and soooo very busy lately!  Sorry for my lack of posting.  I have great intentions and lots to write about, however the days, kids, tasks and jobs that are at hand…seem to swallow all of my time and energy as of late.  I feel awful that I have not kept up with my blog, but it is for good reason.  We have really been loving time with our family and especially enjoying the record warm weather out and about!

Things have been busy with the fundraiser.  I have made hundreds of calls and written literally hundreds of emails.  Through it all, I am so amazed and encouraged by the hearts of others.  Everyone from complete strangers, to friends and family that are willing to go out of their way to help.  It brings me to tears!!  It fills my heart with hope!  It makes me want to fight so much harder knowing that we have a team of others that are committed to helping us WIN IN OUR FIGHT AGAINST CF!  Go R-TEAM!!!  The fire in my heart to find a cure for my child is great, because of my deep love for her.  However, when I think of the love from friends and family taking time out of their days to help…it blows me away and humbles me beyond belief.  God is good!  It is so very difficult to plead with others for the life of my child, and frankly,  I am terrible at asking others to help!  Yet, my heart compels me onward!!!  In spite of the many hours and intense work of calling, and asking others, the highlight of this process has been the people.  I can not tell you the joy that floods my heart with the amazing people that I have met who are willing to be part of R-TEAM (Rachel’s Team)!  I am so encouraged by every “yes” that we get.  Every person who is willing to come, to help, to give, blesses us.  Each and every one is precious to this mama’s heart!!  The list is literally growing every day!  I love it!  I know that each person willing to help, and each item given represents Rachel’s LIFE….BREATH….FUTURE!  It represents money that will buy the research for the cure that she desperately needs.  PRAISE THE LORD FOR HIS WORKING IN THE HEART’S OF OTHERS!!!

Big brother making calls for his little sister! So thrilled with his willingness to help. He has done an amazing job!

Rachel’s Raise of Hope Update

**We are finished with the video.  It feels good to have that task finished. =)   Thank you for those who have taken the time to watch it.  If you have not, please take a moment to watch it and please, please pass it on to your friends and contacts.  Raising awareness… IS HUGE!!  CF is an “orphan disease” there are only 30,000 people that have this disease.  When people truly understand how awful this disease is and how very close we are to curing it…the more people may be willing to join in Rachel’s fight!

1754Me has shared a video with you on YouTube:

Rachel is a little girl bravely battling Cystic Fibrosis. Here is a look into her daily battle. Rachel’s Raise of Hope is an organization of family and friends devoted to bringing a cure to CF! Please watch and consider helping her courageously fight and win against CF. The cure is close. Please help her reach it! Thank you.

*T-shirts are finished!!  WHOOOHOOOT!  I will try to post the design soon.  Thrilled to have that process finished!  The shirts are red and say “A Matter of Life and Breath”.    If you can not make it to the auction or the walk and would still like to support Rachel’s journey, please email me and we will get you a shirt!  We are selling the shirts for $10.

*Items and Baskets  We are still accepting items and baskets!!  I know that there are some creative people out there with basket items that people would love to bid on.  Each item donated is money to throw at taking CF DOWN!  We do have some great items already in hand!  Disney tickets,  football signed by Nebraska team, golfing packages, Jennie Finch jersey, jewelry, scrapbooking supplies, tool set, hotel stays, “stay”cation basket, baseball tickets, toys for kids, babies and the list is joyfully growing daily.   We have had some wonderful people that have offered to help and  we are so thankful for their help in acquiring items for the event!  *Little note, Nathan has been calling places for the last month alongside me (in the afternoon, =) after his school work is finished).  It is PRECIOUS!!!  He starts by saying that he is calling on behalf of his little sister.  The little man has done awesome!!  I think he has brought in about 15 items himself!!  He worries a lot about his sister and sees her struggle at times with all that comes from CF.   He absolutely loves knowing that he is helping his sister.  Blessed by his willingness to help!!  Please check out our great list so far.  View Auction Items .

*BAKE SALE We need items for the bake sale!  The bake sale was huge last year.  It was great because of YOU!  You baked, you gave, you worked on behalf of Rachel.  THANK YOU!  Please consider doing it again this year.  If you are able to bake a couple of dozen cookies, or cupcakes, or know of a place to ask for donations, please let me know.  You can either drop them off at the Police Hall on April 13th, or email me and we will find a way to get them from you. jcleadsus@msn.com.

*Donate We have had several people already donate on line!  THANK YOU! THANK YOU!  Remember that you can donate on line at this address.  http://www.cff.org/Great_Strides/PaulAndTiffanyLeaders

My heart is truly overflowing with gratitude as we near the date of the auction this year!  God is so good to us and we are reminded DAILY of His provisions, protection, providence, and  perfect plan in our lives!!  Our hope is to raise a TON of money to cure Rachel’s Cystic Fibrosis!   However, today I am reminded also of the hope and the joy that comes from the Lord.  HE is the CURE for each one of us!  He cares about our trials and troubles.  He alone is the Savior, and the Master Physician.  You may not have a deadly disease to contend with or a major issue that troubles you…but He cares for ALL of your burdens.  Big or small we all have something and He desire to be there for you.  He wants to be the Lord of your life.  If you don’t have a relationship with Him, consider it!  He is ready, willing and able and He alone brings joy and contentment.  Sun or rain, He is good!

Thank you again for all of your love and support.  If you have any questions, please feel free to email me at jcleadsus@msn.com.  Blessings~Tiffany

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