• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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Need to update this picture, as this was from last year. One day of medication on days when Rachel is NOT sick. I like to keep a visual record of the medications so that one day when CF is controlled...we can look back at all of this STUFF and REMEMBER WAY BACK WHEN!!!

I love the way the Lord holds us through each of life’s situations!  Big or small, He is so very good…even when there is frustration and trouble in the midst of the trial.

The last few weeks we have been a bit consumed with trying to get Rachel’s medication transferred.  My husband’s job changed insurances on January 1st and we have been working on a smooth transition since (and actually even a few weeks before).  Persistence, prayer and patience!!  These are the lesson that we have had the opportunity to experience again through this last series of events.

I have literally been on the phone for upwards of four to five hours the last 3 weeks trying to get the right medications ordered.  Most of the time I have not been too upset or worried, but as we saw our supply of certain medications dwindling the anxiety began to build.  I called the insurance company and pharmacy I think every day last week at least once.  The problem was with the new insurance, we could order from the local pharmacy like we have done for the last 6 years, but would pay a very, very high price co-pay.  Actually…crazy expensive!!  So, it was a no brainer that we would choose to go through the mail order pharmacy.  However, this has proved to be quite difficult!  Friday night we were told that we could go to the pharmacy and buy one of the medications that she was out of.  I went thinking that we could maybe just pay for the entire medication out of pocket.  Well, after my jaw hit the floor (almost $500), I happily left the pharmacy with a 3 day supply and a prayer that we would get something worked out in that time.   Problem was, we still only had 3 days and were told that it would take at least 7-10 days to get the medication delivered to our house.

So, this weekend we spent more of our time calling and trying to get Rachle’s med’s.  Finally, Sunday  night after having to be quite assertive (and as pleasant as a mama trying to take care of her baby could be) and persistence I talked to several levels of people with in the mail order pharmacy, was able to finally get some resolution.  Medication, preauthorizations on record till 2015!!  Whoohoot!  The simple joys in life are sometimes the sweetest.

During this whole experience, once again we were forced to depend on the Lord.  I love the fact that He is ALWAYS faithful.  That statement doesn’t mean that things will be easy, or that we do not need to put forth great effort…but it does mean that He walks beside us.  I LOVE THAT!!

So, in the “Journey of Faith”, the same lesson visited…only a different day and a different matter.   Prayer,  persistence and patience are qualities that are pleasing to the Lord, especially when life is full of trials!  God is good and we praise Him for His care for us!


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