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    Albuterol (2-4 x)
    Hypertonic (2x)
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    Advair (2x)
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    alpha lipoid acid (1x)
    singulair (1x)
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Thankful We Can Walk!

Rachel with her cousin. Love the back of the shirts! Friends and family walking to support life and future!

An easier read of the back of last years shirts.

Tomorrow is the Great Strides walk for Cystic Fibrosis.  We are so excited for it!  One of our little ones told us today that they didn’t want to walk that LOOOONG way (just about a mile).  They also asked why we walk?  In explaining it to them the flood of emotions came to the surface as I explained,  “We walk so that Rachel and those like her can keep walking with us for a loooong time.”!  Of course that thought still makes no sense to our kiddos.  I went on to explain that we walk to raise money and awareness for those that can’t!  The ones who struggle now to breath, and for those that are currently in the hospital because of CF and for the future medication that will help ease the terrible aspects of this disease.  We walk for Rachel’s future!  Without walks like these, Rachel’s life would be a lot harder, (consequently making all of our lives a lot harder)  and her future a lot less hopeful.

The kids have heard me talk of the new medicines being researched and sense the excitement that I feel in knowing that soon life may truly be different for Rachel.  Our life as hard as we try to keep things normal…we still have to take CF into account on several levels daily!  Things as simple as a cousin that was planning on coming for the walk, has the start of a cold.  Now they are not coming (they were going to stay with us) and it is just not worth the risk.  Or things like, sitting in a restaurant this week, only to have to change seats because someone came and sat right beside Rachel with a big cough (12 foot distance rule with a big cough per the doctor).  While as of late we have felt the calm waters of CF through experiencing health.  It is walks like tomorrow that remind us that we are in a battle for her life!!  With CF you never know when you are going to be in a good spot or a really tough spot.  We have had several years of getting hit every time we turn around.  This has been a good few months of just “doing life” (2 treatments a day and medicines seems easy).  God is good and we praise Him for the hope that He alone brings.

Our hope is not in doctors or medicine it is in His saving, healing grace alone!

We praise Him for being in control.

We thank Him that He gives us life and breath.

We thank Him that we can walk to try to raise money to help doctors find a cure.

We thank Him for friends and loved ones like you!!

THANK YOU!!!

See you tomorrow!

Thank you for helping us to continue growing strong as a family...TOGETHER!!

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One Response

  1. I LOVE this post! Soooo many great pictures! What.a.team!?! My favorite picture is of you and your hubby towards the end. This is an awesome display of love for Rachel! I love the story that went along with this post, as well!

    You are such an encourager to me. Thank you for your sweet words. I often read my comments on my phone and, as well, read your blog through my Google Reader so I don’t have a chance to write back as often as I would want. But I was compelled to write a comment on this blogpost! And I wanted to thank you for your sweet prayers. It really means alot to me personally. This morning, specifically, I felt less alone when I received your comment saying you had prayed for us. Thank you! 🙂

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