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    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
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    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
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    zyrtec (1x)
    azithromyicin (M, W, F)

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ONE WEEK till the walk

2010 Rachel's Raise of Hope!!!

This will be our sixth year of doing Great Strides.  Our first year of walking we had two sweet friends that came and walked with us.  It was so humbling.  So many others had big teams, and then of course at these types of walks you often see the shirts “Walking to Remember”.  We were encouraged (by our sweet friends), as well as greatly discouraged and left feeling very alone with this HUGE battle ahead.  Rachel was not yet one year old.  And yet, Rachel’s first year battling CF was so intense!!  So much to learn, SO much work, and then all of the emotional issues to try to deal with too…it was tough.  The next 2 years year we had a few more friends join us.  It was a huge blessing!  Although small…we had friends!  Friends that cared, friends that would take time out of their busy schedules to show their support, friends that prayed for our baby.  It was amazing!

Our 3rd CF walk. We went from 2 people that walked with us the first year, to a little crowd the third year. Blessed by these people!

OUR TEAM!! Rachel's Raise of Hope!

Each year we have felt the love and support increase.  WE ARE BLESSED.  Last year was an incredibly hard year for Rachel!  She struggled and fought monthly for health, breathe and wellness.  The day of the walk last year she was just coming down with a cold.  When she is sick it is soooo intensely different than when any of our other children are sick.  Her sickness comes with an increased work load attached to it.  The pressure knowing that often times getting over a tough spot in CF comes from vigilant and persistent effort  (hours of pounding lung therapy, hours of holding a nebulizer, going to jump on the trampoline when it’s freezing outside in order to open up airways,  constant pushing of  food, constant prayer) these are all the “daily battles”  the stuff that brings you to the brink, and forces you to call on Jesus.   Last year we dropped Rachel off at someone’s house for the walk (it is somewhat dangerous for cfers to be around other cfers with the threat of bacteria that cfers pass to one another).  It was emotionally difficult to see her getting sick and for the rest of the family to be heading out for a fun time walking for support of CF.

Then we got to the walk.  Amazing!!!

Steps for life and future

Orange everywhere! Even under the coats. It was a REALLY cold morning.

Overwhelmed by the support for our family and Rachel’s Fight!  God is good and we are so thankful that He sends people to come along side to share His love!

This walk is so much more than just a walk, it does represent hope.  It represents progress, before Rachel we had never heard the word Cystic Fibrosis, as many of our friends hadn’t either.  However, now not only do we know about it, but we are FIGHTING FOR IT TO BE A WORD OF THE PAST!!

We hope you can make it this year!  It means a lot to our family!  As well as the many people that are just starting this journey of cf.  Encourage them too.  We clearly remember the first year being at the walk.  It was an encouragement to see big groups of people all fighting for the same cause.

And whatever you do, whether in word or deed, do it all in the name of the Lord Jesus, giving thanks to God the Father through him. Col. 3:17

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