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    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
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    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
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    zyrtec (1x)
    azithromyicin (M, W, F)

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Amazing Giving!!

For where your treasure is, there will your heart be also. Luke 12:34

I don’t even know where to begin.  My heart that is so full of gratitude for those friends, family, and even strangers that have come alongside us in the last month to help.  It has been amazing!!!  When we felt the call to do this spaghetti dinner it came with much trepidation and a huge uncertainty that we would have the people around us to help.  Well, I am reminded daily when God gives you a task…He is with you through it all!!  God has been faithful in sending people to help.

Last week we attended a benefit for the AAA Center for pregnancy counseling.  It was AMAZING!!  Bruce Wilkinson spoke, and over and over he spoke about our treasure and faith.  That night over $500, 000 dollars were raised to support life!    It was one of the most incredible things I have ever been a part of.  It was a moment that exemplified God’s heart.  One of compassion for the lost and dying child.  While we watched and participated in the giving- the tears began falling with each person that walked forward with their gift.  I was thankful for Shiloh, and Jacob and so many others that have been born despite difficult circumstances.  I was overtaken with the reality of how very important life is, and how the Father desires goodness for all His children!  My heart was also reawakened to how much God truly does care for our current needs. He cares for Rachel’s life and her future!!  He knows, He loves, He helps, and he sends others to partake in that care!  By the end of the night I was literally an emotional mess.  Sometimes in this fight against CF we feel very alone, but it is the Lord who reminds us daily that we are not!  Watching the people’s heart of giving that night was a reminder that God uses His people and their money to change the world for His glory!

 

Rachel and all of her medical "stuff". The plate is the medicine that she takes each & every day. The big machine percusses her lungs to shake the thick mucus out at least an hour a day when she is well. There are 5 different inhaled medicines/3 nebulizers/chambers to keep her airways as clear as possible. Blessed by the Lord for His goodness and faithfulness daily!

If I were to define the verse above myself, treasure in heaven would simply be living life with

open hearts and open hands.

Open hearts means we have a heart that God has – one for the poor, the weak and the sick.

Open hands means that we have a loose grip on our own possessions so that our earthly goods are used to have an impact on those who are less fortunate for the sake of Jesus Christ.

We store up treasure in heaven by seeking the Kingdom of God through helping others, which demonstrates the greatest of all sacrifices that God made for us!

So, as this verse relates to Rachel…I continue to be humbled by the amount of love and care that is coming forth in our efforts to give Rachel (and others fighting) a future, beyond CF.  Seeing people’s hearts of compassion and willingness to help us is a porthole into the heart of Jesus.  He has come to give us life (both physically and spiritually)  abundantly.

This last week our family devotions were all related to contentment and financial resources.  In and through our discussions with our family it has been intensely clear that God desires us to use our money well.  It is not our own, but rather His to be used for His purpose and glory.  He receives glory through generosity.  Giving of ourselves and our resources is not a natural thing, it is however a God-inspired thing.  Ironic that we have been reading about this..no…just fitting in with the lessons and places God is taking my heart spiritually.  He is teaching me about generosity from the other side, the side that demands incredible humility and grace to accept what we do not deserve and what I could never ever repay.  It touches my heart and encourages my soul in the deepest part of my being.  It is with each and every gift that people have given a reminder of just how much the Lord cares!  He is near, and blesses us with others to walk along this journey called life.

Deuteronomy 15:10 Give generously…then because of this the Lord your God will bless you in all your work and in everything you put your hand to.

Each gift, each sacrifice is a mark on Rachel’s life and future.  Each day Rachel fights this disease of Cystic Fibrosis, and while there are medicines currently that slow the progression of this disease.  We know that with out better medicines this disease will eventually tear down and destroy her lungs and body.  As a mother, I fight!! I don’t want that day to ever come where we must surrender our baby to  CF.  So, while it is tough to know each day CF steals a part of her future away, I am encouraged to know that I don’t fight alone.  God is bringing others alongside to encourage me to fight harder for the resources to bring lifesaving medicine to her.

Knowing that there are so many people who love us, and choose to sacrifice and

live simply –so that my child can simply live… is huge!!

With a mother’s heart of intense joy, humility and gratitude-I give thanks!

A day of playing and making memories.

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