• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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  • Monthly Archives

Cautiously Optimistic =)

God is Good!!

Rachel is giving her doll medicine. She told me the other day that she had CF too. =)

Well, we have now been on the new enzymes for the last 3 days.  So far…it seems to be staying about the same as we have tried to get her back to a more normal/high fat diet.  She is on the highest dose possible (which the dr’s don’t really like, because if she runs into problems with weight we can’t go up on dose without some dangerous side effects) and the added antiacid to help it be absorbed, but it seems to working so far.  PRAISE THE LORD!!!  She has only complained a few times the last two day of stomach cramps.  I am so thrilled.  I know it is only the power of prayer and the greatness of our God!!  I could jump up and down and scream of His goodness toward us.  It is times like these that I am reminded that God cares for our every need and that He provides all of WHAT we need!!

I will sing to the Lord for He is good.  His love endures forever. Ex. 15:2-3 The Lord is my strength and my song; he has become my salvation.  He is my God, and I will praise him..The LORD is a warrior;the LORD is his name.

Thank you so much for the prayers!!  We are greatly blessed by so many that have prayed and offered us encouragement.  We are blessed beyond words.

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