• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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New Plan-Enzymes

Well, I spoke with the doctor several times today and he would really like Rachel to give it another try with a different enzyme.=( (It is very similar to the other one that we just tried.  I am not sure I am ready for it, or better yet if she is ready for it but…we need to have a long term plan in case our enzyme company doesn’t end up producing more enzymes and staying in business due to the FDA approval process.  The doctor has a plan to add a double strength of an antacid to hopefully help the enzyme to be absorbed.  They are hitting it as hard as possible.  Rachel will be taking a lower dose of pills (for added beads in each pill), so she will be taking 8 to 11 pills each meal.  ARGGG!!  But, whatever it takes.  I told the doctor I would give it a valiant try, but I am also not going to watch her suffer for days on end if I can clearly see it is not working.

Please pray for us the next few days.  God has a purpose for all that He allows, so we put our trust in Him and Him alone!!!  Singing praises to the Lord who saves, guides and directs.

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