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Update on pills-Grateful, but Still…

So first of all I have to say a big thank you for all of the prayers with this latest trial.  God is good, and He is faithful.  We praise Him for His enduring love towards us in whatever our situation!

So last week was spent on the phone with many calls to various places.  One morning I was literally on the phone from about 9:15 until just shy of noon non-stop.  I called every pharmacy in town, as well as manufacturers, insurance company, and a host of numbers that those people gave me.  I also received a call back later in the afternoon from a person from the FDA.  I spoke with her for about 40 minutes on the phone concerning Rachel’s situation.

I was able to find a pharmacy in Florida that had 15 bottles (250 ct) so we were able to get a script filled that took about 7 of those bottles.  Our insurance covered it!!!! Praise the Lord!!!  We were so thrilled since we really didn’t have an extra $1,294.56 hanging around.  However, the bad news was that they couldn’t save the other 8 for us and our insurance wouldn’t let us get any more till next month.  They were also unsure if they would cover it next month. =(  I was really discouraged that we may be in the same situation next month.  I had a very sweet lady remind me though to not miss the blessing of the enzymes received because of the uncertainty of the future.  God gives us what we need, and in His perfect time.  All to bring glorify to Him.  That was a huge reminder.  So as Paul and I continue to work hard at finding a lasting solution….we are singing praises for what God has done, and knowing that He will continue to take care of us!

So as I continue to try to figure out a solution to this situation long term, the one thing that is clear to me.  If you notice in this picture above, the enzymes that work are on the left.  There are probably a hundred beads of different sizes.  Some small, some big which would mean that they would break down in the digestive system at a various rate.  The enzyme on the left there are maybe 19 beads.  So as I see it, it is not only the sodium bicarbonate that coats the beads on the left, but also the size.  It is like a handful of sand in one hand and a handful of rocks in the other.  The sand is going to cover more surface.  I think it is the same with Rachel’s digestive system.  Since she had bowel surgery at birth, there has always been a question of the integrity of her intestines.

So now the question is do I continue to fight trying to find every last bottle of her enzymes in the country and getting the company to start producing the enzyme again or…pray that God changes Rachel’s system?  God is big enough for both.  We had a friend out on the east coast that called to every pharmacy that she could find and was able to find a Target that had a different store house than the midwest that still had 30 bottles.  They are  sitting at the pharmacy waiting for us.  That will give us about 3+months.  So the good thing is we have some time to work on a solution…the bad news is I don’t know what that solution is or in what direction to pursue.  Thankful that God does, and that He promises to takes care of our every need.

Thank you for the prayers, and please keep them coming.  We have a short term fix, but still no idea what we will do for the future.  As one of my favorite songs goes, “I don’t know about tomorrow, but I know who holds the future and I know who holds my hand.”

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One Response

  1. HI Paul and Tiffany!
    We have been praying for Rachel’s situation with these enzymes. Thanks for the update and we will continue on in prayer as you continue to seek what is next. You are one amazing woman and such an encouragment to me eveytime I read your blog… So glad to hear that the walk went well too! Christ just radiates through you even in your writing!! Miss you all!

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