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  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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4 More Days Till the Walk

#4 “Woe that child which when kissed on the forehead tastes salty.  He is bewitched and soon must die.” This adage, from northern European folklore, is an early reference to Cystic Fibrosis as it’s recognized today.

4 More days till the Cystic Fibrosis walk. (Sorry, I missed a day somehow.)  This quote, makes me sad, and yet the hope that is present brings encouragement.

This picture was two years ago at the walk.  The first year we had 2 people, I can’t wait to take a picture of our team this year1!  So for there have been about 70 people that said they are coming, (now we will pray the weather is good, and that they actually show up ).  I am soooo excited!!!  The love and support means more than words could ever express!!!  Soon…soon…the walk will be a “remembering when” walk.  We are so very close to a cure!!


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