• My Family

    Blessed by the Lord for the Joy of family!!

  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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6 DAYS TILL THE CF WALK

Fact #6: Seventy-percent of those diagnosed with Cystic Fibrosis are diagnosed by the age of 2.

Our life was dramatically and in an awesome way changed with the birth of Rachel!  We had a rough start, then to find out on day 10 that she also had Cystic Fibrosis. We are thankful for the early diagnosis, although an enormous shock.  Without this diagnosis we most certainly would have had a delay in getting good treatment, meanwhile allowing the mucus and inflammation in the lungs to get a good head start.  It was a tough first 6 weeks in the NICU, but there is joy in the midst.  Working to praise God for the lessons, joys and trials that come with this disease .

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