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  • Rachel’s Daily Cystic Fibrosis Medications

    Albuterol (2-4 x)
    Hypertonic (2x)
    Pulmozyme (1x)
    Glutathione Inhaled (2x)
    Advair (2x)
    Prevacid (2X)
    Ursodial (2x)
    Glutathione oral (3x)
    L-Arginine (1x)
    Acidophilus (3x)
    Vitamin (2x)
    Periactin (2x)
    vitamin d3 (1x)
    Cal/Magnesium blend (1x)
    ADEK (1x M,W,F)
    Creon 12 (6 with meals and snacks)
    Vest (2-3x) 30 minutes
    Percussion (30 minutes)
    alpha lipoid acid (1x)
    singulair (1x)
    fish oil (1x)
    nasonex (1x)
    zyrtec (1x)
    azithromyicin (M, W, F)

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WALK DAY TOMORROW Details

WE ARE SO EXCITED TO WALK TOMORROW!!!

May is always a busy month for everyone with a  thousand graduations and weddings, and activities galore.  Every year I am amazed and overwhelmed that people would take the time to come spend a couple of hours with us walking to raise awareness and help us FIGHT for our girl’s life and FUTURE!!! INCREDIBLE!!!

It is suppose to be rainy, but hopefully warm this year.  In the thirteen years we have walked, we have now had one day where it was nice weather.  JUST ONE!!  All of the other ones have been rainy, most FREEZING COLD with the rain, and one where it was blazing hot. IT IS MAY!!  It should be nice, pleasant weather.  But, just like cf, it is unpredictable and most of the times not what we would want it to look like.  BUT….WE DON’T GET A CHOICE on weather and we don’t get a day off of cf.

Our shirts, STR3NTH 65 is such a reminder to us that we do not get a day off from the struggles of this disease. Yet, as the back says. FEAR not Isaiah 41:10  The Lord our God is with us.

DETAILS:

9 am Registration starts at (we will be there somewhere around 9:20 or so especially if it is raining).
10 am Take Rachel’s Raise of Hope pictures.
10:30 am WALK STARTS (short mile walk around the Stinson Park in Askarben 2285 S 67th St, Omaha, NE 68106

FREE LUNCH and ACTIVITIES for kids following the walk.

We will be at tent  #8.  Please come there to find your shirts. If you know for sure that you can not make it, we would love to know so we don’t bring shirts out on the chance that it rains. =)

We are grateful each and every year for the love shown to our family and our struggle with cystic fibrosis. It is a difficult disease, but we are encouraged and uplifted in awesome ways from each one of you! You are the best team that we could ever ask for.  THANK YOU FOR THE LOVE TO US!!!

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